The Jones Lab research focuses on two areas. First, we study financial hardship and financial anxiety within the context of chronic medical conditions. A large portion of this work focuses on psychometrics and developing rigorous measures of financial hardship for people with cancer, people with dementia and their caregivers, and for the general population. We also study how financial hardship and financial anxiety affect quality of life and disease outcomes through adherence and other mediators. Currently, we are studying how administrative burdens (e.g. red tape) lead to financial hardship in people with medical conditions.
Second, our research focuses on advancing the science of clinical outcomes assessment, particularly for patient-reported outcomes. This work tests unique methods of interpreting patient-reported outcomes that are personalized to what each individual patient values and finds meaningful. An additional foci is determining how to define meaningful change on patient-reported outcomes. Lastly, we are working to improve measurement of determinants for implementing evidence-based cancer care.